Видео 518
Просмотров 1 763 446

Community Pulmonologists Educational Session

4:48:35

Use of Genetics in ILD

1:02:44

Taking the leap: Preparing for a lung transplant

48:46

Global View of ILD

1:04:10

Using supplemental oxygen

1:09:25

Pulmonary fibrosis research in the pipeline

1:06:38

Nurses and Allied Health Professionals | PFF Summit 2023

In this session, nurses in the field of pulmonary fibrosis and interstitial lung disease will have a complete overview on how to care for patients.

Видео

Community Pulmonologists Educational Session

4:48:35

Community Pulmonologists Educational Session

Просмотров 293День назад

In this session from PFF Summit 2023, Community Pulmonologists are invited to tune in to learn how to better understand interstitial lung disease and how to better care for patients.

1:02:44

Use of Genetics in ILD

Просмотров 30114 дней назад

Genetics are a hot topic in the field of pulmonary fibrosis. While this session is tailored for the healthcare professional audience, tune in anyway! In this session, you’ll get an overview about what researchers and healthcare professionals are uncovering about genetics and ILD. For a more patient-friendly version of this talk, head over to our playlist titled “PFF Summit: For patients and car...

Taking the leap: Preparing for a lung transplant

48:46

Taking the leap: Preparing for a lung transplant

Просмотров 32021 день назад

A lung transplant is a major surgery and a huge life decision. At the PFF Summit, we held three separate sessions all about this very important topic. In this standalone session, you’ll get a one-hour overview of the lung transplant journey. For even more information about transplants, you can also check out the other two sessions, which is an additional 2 hours of expert presentations. Check o...

1:04:10

Global View of ILD

Просмотров 35328 дней назад

Pulmonary fibrosis knows no borders. In this PFF Summit session, join a panel of experts as they discuss how global climate change affects patients in climates all around the world, how treatment and diagnosis differs around the world, and much more.

1:09:25

Using supplemental oxygen

Просмотров 852Месяц назад

Supplemental oxygen is one of the FDA-approved treatments for pulmonary fibrosis. In this PFF Summit session, you’ll get a complete overview all about oxygen, including usage and safety, and the different types available.

Pulmonary fibrosis research in the pipeline

1:06:38

Pulmonary fibrosis research in the pipeline

Просмотров 414Месяц назад

🔬🧬 Research, research, research. It’s one of the biggest themes at the PFF Summit. In this session, you’ll learn all about what’s currently happening in the field of pulmonary fibrosis. While this session in particular is a little more tailored for researchers and healthcare professionals, tune in anyway!

Improving pulmonary fitness for pulmonary fibrosis

53:32

Improving pulmonary fitness for pulmonary fibrosis

Просмотров 968Месяц назад

Ever wondered if you can exercise while living with pulmonary fibrosis? The answer is YES! In this session from PFF Summit, learn about pulmonary rehab and the importance of exercise when living with PF.

Get Involved! Advocating for better access to supplement oxygen

43:55

Get Involved! Advocating for better access to supplement oxygen

Просмотров 180Месяц назад

Many people in the PF community struggle to obtain much needed oxygen. In this PFF Summit session, you’ll learn about the barriers people have faced, their stories, and how you can tell your elected officials to take action.

14 Navigating your social and patient assistance resources Full Session v2

33:16

14 Navigating your social and patient assistance resources Full Session v2

Просмотров 101Месяц назад

Insurance claims, specialty pharmacies, paperwork…. It’s confusing. 😵‍💫 In this PFF Summit session, join a panel of experts as they explain the healthcare systems and patient resources you should know about.

56:22

The future of clinical trials in ILD

Просмотров 509Месяц назад

Pulmonary fibrosis research simply is not possible without patient volunteers. In this session from PFF Summit, join researchers as they discuss the results of interesting research studies. 💙🔬 And we love one of the points that Dr. Flaherty said about the participants PFF Registry - without them, some of the slides would have been blank. Courageous patient participation has helped us answer som...

4:45

Pulmonary fibrosis life expectancy

Просмотров 2,1 тыс.Месяц назад

One of the scariest results you get when you look up pulmonary fibrosis is a 3-5 year life expectancy. But is it true? In this video, Dr. Sonye Danoff walks you through this. She explains where this outdated statistic came from, how far we've come, and most importantly - that every single person with pulmonary fibrosis is unique.

Exercise, Education, and Pulmonary Rehab for Pulmonary Fibrosis

58:27

Exercise, Education, and Pulmonary Rehab for Pulmonary Fibrosis

Просмотров 641Месяц назад

Did you miss our live webinar on exercise and pulmonary rehabilitation for pulmonary fibrosis? 🌬️ Don't worry! You can now watch the recorded session and gain valuable insights on how to manage your condition and improve your quality of life. In this webinar, we covered: ✅ The benefits of exercise for pulmonary fibrosis ✅ Effective pulmonary rehab techniques ✅ Tips on creating a safe and sustai...

Research: Be the change you want to see in PF

57:24

Research: Be the change you want to see in PF

Просмотров 228Месяц назад

There is a TON of research underway for pulmonary fibrosis. Researchers have dedicated their careers to finding answers about this disease. In this PFF Summit session, we’re giving you an inside look about what the field of PF research looks like today. And as the title says, “be the change you want to see,” this session also explains why research NEEDS patient volunteers. ⚠️ Without you, resea...

Using Narrative Medicine to Understand and Live with Chronic Illness

55:14

Using Narrative Medicine to Understand and Live with Chronic Illness

Просмотров 375Месяц назад

Pulmonary fibrosis can be scary, and is often described in our community as a lonely disease. Telling your story can have a positive impact on your health and mental wellness. In this session from PFF Summit, you’ll listen to the stories from a physician and two patients in the PF community. Watch now!